Just checking in...

Whoa....what a week already! Training is going great. Exhausting but great. I was actually at the dentist today and was talking about Sophia and the doctor stopped me and says "wait are you a nurse?" I will take that as a compliment. With all of the training, being there everyday and sitting in at round table meeting with doctors, I'd say I picked up a thing or two. I am officially making myself a badge that says, Mom MD. Sophia is doing wonderful. We have successfully weened her off of a rate on the vent and she is now two days on CPAP. CPAP still comes through the vent machine it is just a different setting that allows her to breathe on her own but gives her airways pressure to stay open longer. Today, Soph went down for a swallow study with daddy to watch how she feds and swallows. She failed right off the bat. She has been trying the bottle twice a week and not really taking much and sometimes just pushing it out. Yesterday, the introduced rice and she swallowed that a little easier. Today, during the study you could see on the x-ray as soon as she swallowed it went down her windpipe. This means she will continue on gtube feedings and they will lessen the feeding practice to twice a month to avoid the continual aspiration. This means her swallowing abilities are there but something with the anatomy isn't quite ready yet. Tomorrow starts the 24 hours shifts for our other caregivers. This also means 48 hours of mommy not seeing Sophia. What in the world will I do? I think I am going to have to break a rule or two and sneak in for a visit. John and I have to finalize the house preparations for Sophia's arrival and we are also planning one final worry free date night. We miss each other a lot. With his work schedule and me being at the hospital with Sophia, there is not much time for us. This is also another important reason why it is going to be so wonderful at home. Home is where we belong. Home is where we can be a family. Home is where the HEART is:)

So for now we wait, 3 more days!! But for now, I sit and wait for the equipment delivery guy for Sophia's medical supplies. They better show up. I will not have anyone holding this momma up on getting my baby home. :)

Continued prayers please....and you better say one for the delivery guy too if he decides not to show up ;)