ARE YOU READY.....
The Sleep Study results are in....
SOPHIA CAN COME OFF THE VENT AT NIGHT!!! NO MORE VENT!!!!
BEGIN HAPPY DANCE...
And begin wiping happy tears!!!
By far on of the best phone calls I have received in months. Since Jan 31, 2012 Sophia has been on respiratory support provided by the vent. We have been off the vent during the day for months now. We have had one previous sleep study in August to see if she was ready then but the results didn't come back as hoped. Now after a few months and another sleep study, Sophia is ready. This has been a long time coming. It has been a family struggle dealing with the vent. Recently (even more than before) it has led to many restless nights and panicked hustles to change her trach in the middle of the night. Now finally, we can DITCH THEVENT. I know Soph is going to be just as happy as we are to get some easy rest. She has been rolling and turning a lot in her sleep lately. Kicking the tubes and getting wrapped up, tangling herself and the trach pulling out. Now we can all rest easy (with slight less worry). The doctors have ordered her to be on the trach collar at night for humidity and with slight oxygen use until our next visit then they will re-evaluate. I am perfectly okay with that. I cannot tell you the sheer joy I had when the nurse called me today. I literally jumped up and down and I think I shouted in the phone. The nurse shared in my excitement! Now, I cannot wait to share our triumph with you. THIS IS A BIG DEAL PEOPLE!! Oh man here come the tears of joy again. What a relief beyond compare. Our daughter is finally coming off of support. She is growing stronger and stronger. NOW, with the vent out at night...the real fun can begin, starting the process of getting the trach out. At our prior doctors appointment, we were told that based on our sleep study results we would then start the process of getting the trach out. AHHHHH! Exciting things are happening in the Rhodes home today. I am elated beyond belief! I am so happy for our family, for Sophia. She is my rock star and I am so so proud of her accomplishments. I must also thank you all for the extra prayers. We needed them and they worked. I just think I was going to crumble if we didn't hear the news we did today, so thank you! Thank GOD. Sophia is moving mountains people. HERE WE GO!!!
GOOD BYE VENT!!!!
So happy for you!!!
ReplyDeleteI just knew she would make it this time. She is advancing by leaps and bounds. I couldn't be happier for you and John , but mostly for Sophia. She has met so many milestones, in spite of her added equipment and support, not because of it! She is a trooper, but remember, she doesn't know the difference, NOR will she remember any of it!
ReplyDeleteThose little steps forward, will become big steps now, and will come faster and faster.
Happy Thanksgiving to you and your families. You have so very much to be thankful for this year. Thank you to your family for sharing Kelsey with us. My family is very thankful to have her as a part of ours!
Sending much love, and continued prayers....
Shelley