Tuesday, January 31, 2012

LARYNGOMALACIA - collapsing of the soft tissue of the upper larynx

Sophie has been holding her breath from time to time until she turns purple which has been worrying Amanda and I. This morning Sophie's nurse spoke with the doctors and told them that something did not sound right when she was breathing. The doctors took a look down the back of her throat and noticed that tissue in her throat was constricting and not allowing air to pass through. The doctors decided she would need to be on a ventilator, a machine that opens up her airways and allows her to breath. The doctors first step to trying to fix this issue is to put Sophie on a steroid medication in hopes of decreasing the inflammation. They plan to check her airway again in about 48 hours to see if this has helped. If this does not work then the doctors are going to go in with a laser and trim some of the tissue down in hopes of opening up her airways. Lastly, if neither of these steps help then Sophie will have to have a tracheotomy (check spelling). Amanda and I were pretty upset about this news but we have each other and know that everything that is done is to help her out. Thanks for reading!
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4 comments:

  1. The Rhodes FamilyJanuary 31, 2012 at 2:42 PM

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  2. JenJanuary 31, 2012 at 4:09 PM

    We love you John, Amanda, and Sophia! We are thinking about you and praying for you everyday!

    Love,
    Jen, Wes, Cordy and Kati (The Tuesday Night Closing Crew)

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  3. Auntie MiMiJanuary 31, 2012 at 4:43 PM

    There is not a moment of the day that goes bye I am not thinking and praying for my beautiful niece, little brother and sister. As parents the two of you have been so strong and brave through all this. I'm so happy God allowed for the two of you to meet. Truly amazing husband and wife, best friends and now parents. She is being well taken care of by all the wonderful nurses and doctors there on the unit. Truly amazing individuals who are sincere about what they do and how they care for these little precious gifts.
    Aunti MiMi loves you baby Sophia :)

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  4. Tanya BennettJanuary 31, 2012 at 5:53 PM

    Precious Sophia,

    You are a gift from God and loved and treasured by so many. How incredibly blessed you are to have such strong, courageous, and loving parents. This strength has been passed on to you, sweet child. As I have sat with you and looked into your eyes you can see beauty, determination, and character.

    You are LOVED and you are prayed for daily.

    "See, I have inscribed you on the palms of My hands" Isaiah 49:16

    In His Love and mine,

    Tanya

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