Sophia has been on steroids for the last 48 hours to help reduce the effects of the laryngomalacia. We spoke with Sophie's specialist today and were informed that on Monday he was going to take out her ventilator and see if the laryngomalacia has been reduced from the steroids. If Sophie does okay after the ventilator is taken out then he will take her back to the NICU and monitor to see how she does. However, if the steroids did not seem to help then he is going to perform whats called a superglytoplysty (check spelling). This is where he will take a laser and trim some of the tissue around the air way to open it up a little more so she can breath on her own.
Moreover, if neither of these options work than they will have to perform a trachea. We are hoping for the best but are prepared for the worst. Thanks for reading!
John & Amanda,
ReplyDeleteIn case nobody has told you this today, you are an amazing couple and wonderful young parents. Sophia hit the jackpot on having a wonderful daddy and mommy!! It is never easy to see your child in any kind of distress, and you have seen more than most parents ever have to deal with even when their children are much older. You are doing an amazing job taking this one step at a time and being positive in the midst of difficult life circumstances.
This is a passage of the Bible which helped me during a troubled time in my life. I hope it can help you, as well. You are loved and you are being covered in prayer.
"Unless the LORD had given me help, I would have dwelt in the silence . . . When I said, 'My foot is slipping,' Your love, O LORD, supported me. When anxiety was great within me, your consolation brought joy to my soul ... the LORD has become my fortress, and my God the rock in whom I take refuge." Psalm 94:17-19, 22
In His love and mine,
Tanya