Hope for the best and brace for the worst!

Well,  Miss Sophia had her third surgery today. Our ENT doctor took her into the OR around 1pm today to take a closer look at her throat with a scope and while he was at it he looked at her nose again. In the OR, they took Sophia off of the ventilator and for a while she was breathing just fine. It is when she is stressed or worked up she panics and tries to breathe in so hard her baby airway completely closes off on her. COMPLETELY!! He was able to capture a picture of it he shared with us. This also explains why she was turning every shade of purple I did NOT want to see on my child. So now, they are saying the laryngomalacia is severe. Dr. Morganstein didn't sound to convinced that the superglytoplasty surgery was too successful but it was still worth giving her the chance to let it work. We are going to give her until Wednesday to heal and then they are going to take the vent out and give her a chance to breathe freely on her own. IF for some awful chance, she cannot successfully and efficiently breathe on her own then they will have to perform a tracheotomy. We will know by weeks end if that will be the next step and the trache will be performed beginning of the following week along with the surgery to put in the g-tube. At this point, we can still only prayer for positive outcomes, but John and I are very aware of what the next steps will be and our preparing ourselves both mentally and emotionally. With the trache there will be set backs but nothing out weighs the risk of not having our sweet baby girl with us.  We know a trache will save her life and we will (no matter what the circumstances) always vouch to give our daughter everything she needs and a fighting chance to get healthy and home is always top priority.Realy, when it is all said and done, a trache will be a very small price to pay for a lifetime of sweet memories with our baby girl. AND in the spirit of being positive, it will not be permenant...once she is older and stronger and ready, we can have it taken out!!  A trache will get us home. And you know what they say, you can not rush perfection and our little sugar butt is absolutely perfect to us.  So for now, sweet Sophia is sound asleep in her little crib in the NICU dreaming of mommy and daddy while mommy and daddy are heading to bed to dream of our sweet Sophia.