Today's events...

Today was quite the productive day for Miss Sophie. We got up early for our morning weigh ins and care. We are up to 9lbs..woot woot! Normally, I lady never likes to admit weight gain but in Sophia's case its about time we start packing on the LBS:). She also had PT and OT work with her this morning. They will be coming around twice a week to work with her development. Then Sophie and Daddy got some quality and much needed cuddle time in. We also had some visitors come by and love on our sweet girl as well:) So naturally, it was then nap time for the little one. While she napped, mommy and daddy snuck out for a quick bit to eat. After nap time, John and I got to do our first trach change all by ourselves with Sophia today. It really wasn't as horrible as I had thought. It is definitely a lot easier and less painful on all three of us than changing the dang gauze and straps. After the trach change, daddy got to learn more care and earned lots of checks today. As part of the requirements to go home, John and I have to be checked off on different areas of her care in order to make sure we are capable and understanding the levels of her needs and care before they send us out the door. Good thing too, this is definitely helping to ease the anxiety and transitioning as we work towards home. We still have several weeks to get her care routine down pat. John did an awesome job today by the way. I hate to admit it but I think Sophie liked bath time with daddy more than mommy! Good for them though, I loved watching them together. John is such an amazing and caring daddy. He is very meticulous with her care and has the best way to make sure Sophie knows daddy's there and will never let anything bad happen to her. LOVE, so in love with my family! Finally, today's BIG EVENT was that they put Sophie on the home vent machine today. She is still under the weight limit but because she wasn't requiring a rate they gave it a try. She was doing wonderful for like 6 hrs, but weren't quite pleased with her breathing so they added in a low rate. Hmm...here is the kicker with the rate her breathing became irregular or out of rhythm. So they are going to watch it closely and may end up putting her on the hospital vent again. I questioned them because the point of adding a rate was suppose to help her and give her more comfort in her breathing, so why did it make it worse, Doc?? I swear before I leave this place I am going to have my medical degree or at least I am going to become the patient that doctors hate dealing with lol:) Overall today's events were on the up and up...a couple of steps forward and a couple of steps back...the daily tango of dealing with Sophia's health.