Sunday, April 21, 2013

Home again...Again.

What an incredibly long week this has been. I am utterly exhausted and currently running on very few hours of sleep in days. Sleep is hard to come by when you have a sick child and even harder to come by when in and out of the hospital and answering constant monitor alarms. We are finally back home, again. We are hoping to stay here longer than a day this time. Last Sunday, Sophia came down with an awful awful virus. She was sick. Very very sick. For three days all she did was sleep and diarrhea. When she did wake she barely had the energy to open her eyes. She would look around the room for a few minutes then fall right back to sleep. It was awful seeing her soo weak and soo sick. Wednesday came around and she was perking up. Not significantly but more alert and able to stay awake for hours at a time. They took her iv off and wanted to see if she could maintain her levels without help. She was able to do so and by Thursday morning the diarrhea had finally stopped. However, Tuesday night her heart rate kept dropping very low. Around  60s and 50s. I brought it to there attention that this was not normal and they said they would watch her close. Wednesday around bedtime, Sophia dropped her heart rate even lower 50s and 40s while asleep. They ordered and EKG immediately. She had three done from 10pm til 9 am Thursday. The referred us to cardiology. Cardiology came around and said something's about sinus bradycardia. Asked about history of heart disease and pace makers?! They reviewed the EKG and concluded that they weren't seeing anything too alarming but insisted Sophia wear a heart harness for the next 24 hrs. They said due to her improved health from the virus and because insurance wouldn't cover wearing the heart harness as an impatient they felt comfortable discharging us Thursday evening around 4pm. We went down to cardiology and they connected sophia to the monitor. So around 5 we finally had the green light. Though Sophia was in better spirits she was still not very playful but we were heading home. As soon as we got home, John and I started to feel horrible. John was dazed and aching all over. I had the chills and was burning up. I got a low grade fever. I put Sophia to sleep and sent John to bed. I tried breaking my fever all while getting up and down every 10 mins all night to silence Sophia's alarms and make sure she was ok because her heart rate was dropping too low again. It was by far the worst night of this whole week. I called the doctor in the morning and she said to watch her closely and since she wasn't symptomatic then I could bring her into clinic first thing Monday but if her heart rate dropped again throughout the night to bring her back to Riley. So around 2 am we packed her up and headed back to Riley with no sleep for us. They admitted us to the heart center and connected Sophia to telemetry. Telemetry is where someone is continually watching her heart rhythm through a monitor. They kept us over night to get a "good" reading. This morning they came in and said it didn't record anything too significant. Lowest averaged in the 60s which they were okay with and oxygen levels were between 94-100. This is all great. They will want us to follow up as outpatient by the end of the week when the results from the heart harness are back. I truly hope this is all stemming from Sophia being completely worn out from the virus and nothing more. I really really hope that she sleeps ok through the night tonight at home and no more low alarms. I truly do not want to be back at Riley anytime soon. Prayers to continue.... I am going to nap. Wait, moms don't get to nap. Do they?

2 comments:

  1. Nope definitely no naps...lol! Glad you guys are home again! I hope you can stay there for a long, long time!

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  2. Wait babe you have to go back tomorrow for a couple doctors appointments :)

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