The Hospital Life

Here we are again, admitted back into Riley hospital. We are getting far to comfortable with hospital life. Sophia is in very lousy shape right now. I have never seen her this weak since the first couple weeks of her life in the nicu. She's very weak, sleeping all day and night. No energy for anything. Thursday morning, I was subbing and got a call from our nurse that Sophia was throwing up nonstop, which is not usual for soph. I called her pediatrician right away and made her an appointment. She ended up getting a slight fever that broke with Tylenol and by the time the appointment was she was in better spirits, of course. As soon as we got home from the doctor she had another fever and more throwing up. We got both under control and she went to bed sound. Friday she seemed a little better until the afternoon. Then the fever returned, we called the doctor for the third time and he said it was normal when fighting a "bug" to have low grade fevers. Saturday, Sophia slept away the afternoon and then had constant diarrhea all evening. She tolerated her feeds and pedialyte but just seemed miserable. She slept the night and woke up in the morning and looked completely different. Sunken eyes, dry mouth, blue hands. It scared me. She looked like a different baby. We then got in the car and headed straight to the Riley ER. I felt horrible seeing Sophia in that condition. I felt like I had failed her. She was admitted with severe dehydration and then later we found out she is working through a nasty virus called rotavirus. They said I brought her in right on time because it could have gotten much worse. She lost 2 pounds so quickly. I thought I was doing everything right at home; keeping her fever down, giving her fluids and her pedisure but it wasn't enough. We are looking to be at Riley for probably a week or until Sophia can get all her levels back to normal and come off the IVs. She has been sleeping for two days straight. When she wakes, she is very "out of it". Weak and not her happy little self. It breaks my heart to see her like this. We hibernated all winter to avoid getting the flu or any kind of bug because we feared this the most and look here we are. We have no idea how she contracted the virus but it reinforces the need for everyone to always wash their hands and to be aware if you've been around anyone sick. Heck we could have picked it up visiting the doctors office for our checkups or at the park or who knows. It's pointless to find the source. What is important is trying to get Sophia healthy and home again. In addition to Sophia being so ill with this yucky virus, we are also at risk of getting it too. I really pray our immune systems are strong enough to fight it than Sophia's. the last thing she needs is a sick mommy and daddy too. Please say a little pray for Sophia to fight this virus quickly and for her to get back to her healthy happy playful self and that her parents stay healthy. It is so sad seeing her so uncomfortable. I feel helpless knowing I can't do anything to make her better and even worse that I couldn't prevent her from getting it in the first place even with all the precautions we take daily. Right now, Sophia is asleep. Her levels are getting back to normal however she is still having diarrhea and some vomiting. We will be at Riley until everything is back to normal. Prays for a speedy recovery and a soon homecoming.  Speaking of homecoming, today is the one year anniversary of the day we finally got to bring Sophia home from Riley. It was such a joyous long anticipated day. We were thrilled and anxious for getting her home. It has been a wonderful year of growing and change and love. It is amazing what time does. However, it is quite ironic humor to be celebrating our one year homecoming back in Riley. I guess Sophia wanted to celebrate with her peeps. I will say staying in the new side of Riley is a luxury compared to where we lived for 5 months. I have a cot and a couch and a chair and a TV and a fridge and its just like a hotel hahaha. As I said, we are getting far to use to hospital life.

Side note update: Sophia did have her 8th surgery and procedure on her nose. Her airway looked great during the scope. The doctor wants to wait a few weeks before we schedule the sleep study. This virus is setting us back a bit. However we are still on the right track for trying to get the trach out. I am still not hopeful she will pass the first time around but we are a family the believes in trying our best.

Please say a pray that Sophia pulls through this fast. And say a pray for the hearts of this world. This is the second time in a few short months that my heart is broken for people of this world suffering losses for senseless acts of hatred.